DSAP, Sun Exposure & Autoimmune Disease

DSAP, Sun Exposure & Autoimmune Disease

by Summer Kramer, melanoma survivor and founder of SummerSkin SUN EXPOSURE. As a melanoma survivor, I think about sun exposure every day, and as with many skin conditions, safe sun habits are a necessity.  One such condition that has been shown to be affected by sun exposure is Disseminated Superficial Actinic Porokeratosis (DSAP). The known key […]

DSAP: The ‘Silent Condition’

DSAP: The ‘Silent Condition’

Disseminated superficial actinic porokeratosisis is a rare skin disease that leaves red rough itchy lesions on the arms and legs. At this time there is no cure for DSAP so those of us with the disease must learn to conceal and camouflage our spots if we want to wear clothing that reveals our skin. Luckily, DSAP doesn’t […]

Should you use sunscreen in the winter? What about in the morning or late afternoon? (Hint: the answer may surprise you)

Should you use sunscreen in the winter? What about in the morning or late afternoon? (Hint: the answer may surprise you)

I have a skin condition called disseminated superficial actinic porokeratosis (DSAP) which is brought out by the sun, so during the summer I try my best to slather on the sunscreen . But I naively believed that during winter I didn’t really need to protect my skin. I know the skin care professionals say you should wear sunscreen no […]

Stylish Sun Protective Clothing: The Complete List

Stylish Sun Protective Clothing: The Complete List

I have a skin condition called DSAP (disseminated superficial actinic porokeratosis) which is exacerbated by the sun.  Sadly, there is no cure for this skin condition and the only advice from dermatologists is to stay out of the sun. But, who wants to sit indoors? Not me! So every summer I blatantly ignore the advice […]

Strong evidence links mevalonate kinase gene (MVK) mutations to disseminated superficial actinic porokeratosis (DSAP)

Strong evidence links mevalonate kinase gene (MVK) mutations to disseminated superficial actinic porokeratosis (DSAP)

Researchers have found strong evidence linking  MVK gene mutations  to DSAP.  A mutation in the MVK gene could prevent or reduce the cells’ defense against harmful rays from the sun  In late 2012 a group of researchers performed exome sequencing  in one unaffected and two affected members of a DSAP family. Exome sequencing allows scientists to […]

What does DSAP actually mean?

What does DSAP actually mean?

Disseminated Superficial Actinic Porokeratosis: Have you ever broken the words down and figured out what each one actually means? Most people can barely pronounce Disseminated Superficial Actinic Porokeratosis, much less understand what it really means. Since it’s a rainy Sunday and I can’t go outside to kayak or any of the other things that undoubtedly makes […]